Tuesday, November 20, 2018

To Do or Not to Do, That is the Question

In May, Chen (grade 12) got a psychoeducational evaluation.  She was diagnosed with severe ADHD.  She has some type of difficulty processing, but she can read letters and words easily.  It is only when they combine to sentences and paragraphs that she has trouble processing what she is reading.

She began medication, which helps tremendously on focus (she went from being able to focus for 15 minutes to being able to focus for 1.5 hours).  However, much to her disappointment, it did not help with her processing difficulties.  She still has to read things many times in order to understand.

I went back and forth with the evaluator, and she explained that this type of processing is a subcategory of ADHD.  It's not a separate processing disorder.  She said they are thinking of making it its own DSM disorder, but thus far have not done so.

In the meantime, last year, I had read about a woman who had designed a whole bunch of brain exercises involving a 16 hour clock and had trained her brain with neuroplasticity to be able to do things where before she had a learning disability.  I recalled this and wondered if Chen's brain could be retrained.  I looked in vain for that article or talk, but was unable to find it.

By coincidence, somebody posted a list of nonfiction books, and one of them was Brain That Changes Itself.  In it was the story of this woman!  It also discussed different neuroplasticity programs.  One is in Canada and another in Australia.  Then in another chapter, it discussed a program called Fast ForWord.  It is very expensive--over $2000.  It is considered a grueling program.  It claims to do brain exercises that will improve processing.  It is a 6 month program for 50-90 minutes a day.

After looking more closely, the main issues they help with are Auditory Processing Disorder, Dyslexia, Autism, and ADHD.  Chen only has ADHD.  But it may be that her particular issues are not what this program addresses.  Chen's Working Memory is average on her neuropsych eval.  This program strengthens Working Memory and auditory processing.  So will this program help?  If her Working Memory was abnormally low, then this program would certainly be suited.  But in this case...Her processing disorder is not a standard processing disorder.

She did the assessment and I spoke to them, and they said that if she hadn't been tested and found that her Working Memory is decent, they would have said that this program will certainly help.  However, knowing from testing that her processing issues are not exactly what this program does, they can't say it will be helpful.  So it is kind of a risk.

On the other hand, the thought that she might be able to read without re-reading and re-reading and growing mentally exhausted is just a wondrous thought.  Is it worth the gamble?

Here are some testimonials.

I am inclined to invest the money in the hope that she could train her brain to process reading more easily.  At the same time, I wonder if I am just one of those desperate people who will pay for hope and ultimately be paying for something that doesn't work.

If anyone has any experience or feedback for me, please reach out to help me make this decision!

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